We have been given several months to make some changes- both behavioral and dietary- to see if her status changes any. We will travel to Kansas City for an appointment with Dr. M September 10th.
As for behavior...
Sassy must be prompted to go to the bathroom every 2 hours, regardless of need. She has to get into the habit of double voiding (attempting to go potty twice to make sure she empties her bladder completely each time). We've added Benefiber to her daily regimen... apparently it is very important to have things "regular" in that aspect for bladder stability.
And, then there's the dietary no-no list...
NO chocolate or products containing cocoa
NO caffeine
NO carbonated beverages
NO citrus fruits or citrus flavored products- lemon, lime, orange, or grapefruit.
NO artificial sweeteners (i.e. Crystal Lite, sugarless gum...)
Limited dairy consumption to twice daily.
Avoidance of artificial food dyes, NO products containing red food dye (Eek...)
So far, this has been manageable. Sassy loves chocolate flavored anything. Not being able to have chocolate cheerios for breakfast is the bane of her existence. Our trip to Braum's since the implementation was NO FUN. The only ice cream that didn't contain chocolate, red dye, or citrus was... well, vanilla. NOT OK with Sassy. I think the food dyes are the hardest part (that stuff is in everything), but conceptually, I am on board. I mean, I know that stuff is no good for us, anyway!
So, there you have it. We are doing just fine. Anxious for September, but that's still a long way off...
7 sweet tweets:
I'm not sure if you have any grocery stores out by you with dietitian but our local Hyvee stores do provide consultation services if you have certain restrictions . . . I know Sassy was already a picky eater I hope it doesn't get worse. Good luck
Sounds like your off to a great start. Giving up certain things will be hard, but hopefully it will help with the end result!
EEK...so you really have to be a label reader now huh? Ugh.
It sounds like you are doing great. And I know it will get better. You will find some great healthy substitutes and hopefully everyone will be happier and healthier soon! And most importantly hopefully you will see some progress with her!
Wow, that's a whole list of things she can't have! I'm a label reader too when I go to the store, so I know exactly how difficult it can be in the beginning, but after a couple of trips to the store, it gets easier! I know personally I could never go w/o chocolate. I'm a choco-holic!! Poor kid, I feel her pain there.
Food restrictions suck but you'll get used to it and it will become second nature soon. It's amazing how fast kids get used to such changes too. Good luck with all the changes!
Wow, what a bummer. If someone told me I could no longer have any chocolate flavoring I, myself would have a big ole tantrum.
I hope this does the trick though and that she gets to feeling better!
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